Patricia Weltin is the CEO and Founder of the Rare Disease United Foundation, the nation’s leading rare disease advocacy organization. RDUF works on the challenges facing rare disease patients at a state-level and nationally. As a rare disease mom with a background in Finance, Patricia started working in the rare disease space to help raise awareness for all people living with a rare disease. Patricia and her team are innovators in the rare disease space and have used their own rare disease journeys to positively affect change. In four years, RDUF has gone from the ﬁrst state-based, non-disease speciﬁc non-proﬁt to the voice of the 60 million people in the United States suffering from the physical, emotional and ﬁnancial stress of living with a rare disease. RDUF programs target speciﬁc issues and approach them with the wisdom, knowledge and passion that comes with living rare.
Patricia also works advising the Biotech and Pharmaceutical industry to successfully engage in the rare space. Her unique perspective and knowledge of living rare, working on disease-speciﬁc challenges and being the leading advocate on broader rare disease issues provides insights imperative to marketable outcomes.